Jax and Gemma were born in July 2010 at the NICU at Bryan LGH after a plane ride from McCook, NE brought mom and dad in the middle of the night. One the 3rd day in the hospital we were told about Jax possibly having Down syndrome. We were heart broken that our little boy was not going to be as capable as his twin sister. Later in the week we were told that the test was positive for trisomy 21.
We were prepared for it. The Special Olymics were in town and I had been out all week with my oldest son taking him to some spots around town to get out of the hospital for while and spend some time with him....and to absord the inevitability that our lives were now going down a detour we didn't expect. When we found out it was just a relief to know something for sure. Not knowing for sure is the worst.
Within minutes someone from social services was there with the DSAF binder and all that information. We loved Jax already, nothing was going to change that, not Down syndrome or anything. It was a relief to have that information, to see that ther are others having the same feelings. The first second you hear that news you instantly think of all the things you had planned out to do with your baby(ies) and now you can't. Now you're in trouble. The info helped us through a hard time, as well as the did the great nurses in the NICU.
As you can see Jax is perfectly healthy and an adorable kid. He loves to laugh and play. He loves your attention, and to see his brothers do funny stuff. His sister is now motoring around the house on two wheels and Jax has yet to crawl, but is starting to creep around on his belly. It won't be long.
Please consider donating money in addition to your registration fee so we can have a lawn sign with Jax's picture on it at the park during the walk...but more importantly to help fund the DSAF in Jax's name so that other parents will have the same guiding light as his parents did.